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Simpler Grants

No. CDC-RFA-DD-26-0222 · Centers for Disease Control - NCBDDD

Open

Long-term health outcomes of people living with spina bifida

grants.gov listing Full announcement (NOFO)
Dealbreakers Cost share: not stated Audit: not stated Reimbursement-only: not stated
Award range
$100,000 – $300,000
Expected awards
Not specified
Application deadline
Oct 26, 2026
Posted
Aug 26, 2026
Last verified
6 days ago

At a glance

No plain-language summary yet for this grant — the official description below is the best source.

What it funds

  • Health
Official description from grants.gov

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

Who can apply

  • City or township governments
  • County governments
  • For-profit organizations other than small businesses
  • Independent school districts
  • Native American tribal governments (Federally recognized)
  • Nonprofits with 501(c)(3) status (other than higher education)
  • Nonprofits without 501(c)(3) status (other than higher education)
  • Private institutions of higher education
  • Public and State controlled institutions of higher education
  • Small businesses
  • Special district governments
  • State governments
Geographic restriction None found in the announcement — likely nationwide

Program history

USASpending.gov

Assistance listing 93.073 · Birth Defects and Developmental Disabilities - Prevention and Surveillance

Real awards this federal program has made — the whole assistance listing (93.073), not just this notice.

Fiscal year Awards Median award Middle half
FY 2026 (so far) 0 — —
FY 2025 0 — —
FY 2024 0 — —
FY 2023 45 $1,460,000 $1,159,386 – $2,179,627
FY 2022 14 $1,222,500 $1,177,719 – $1,443,038
FY 2021 18 $2,137,796 $1,815,281 – $3,896,053

For comparison, this notice advertises $100,000 – $300,000.

Who wins it Higher education (28), State government (20), Nonprofit (19) of 77 awards — categories can overlap.
Top states DC (6) · GA (4) · IL (4) · TN (4) · FL (3)
Largest recent awards
  1. SPECIAL OLYMPICS INC. $102,371,938 · FY 2021
  2. UNIVERSITY OF ALABAMA AT BIRMINGHAM $38,904,574 · FY 2021
  3. THE JOHNS HOPKINS UNIVERSITY $6,659,319 · FY 2021
  4. MICHIGAN DEPARTMENT OF HEALTH AND HUMAN SERVICES $4,036,140 · FY 2021
  5. RUSH UNIVERSITY MEDICAL CENTER $4,000,000 · FY 2021

Source: USASpending.gov · refreshed Aug 29, 2026

Change history

Since we first indexed it
  1. Aug 27, 2026 Status: forecasted → open
  2. Aug 27, 2026 Deadline set: Oct 26, 2026